Face2Face Healing was created in response to the gap that often occurs when medicine has done all it can but individuals are left emotionally and/or physically unable to adapt to the resulting disfigurement. Each year thousands of people confront facial and bodily differences from common causes including birth defects, cancer, burns, facial palsy or other neurological issues, and injuries or trauma. Many individuals experience loneliness from isolation and/or rejection as well as the resulting despair that living with a “changed” face or “changed” body brings. Regardless of why a face or body is different, the pain and distress from that leaves them feeling alone, confused and unable to resume an active life.
While the healing process is slightly different for each person, the goal of Face2Face Healing remains constant; empower the individual with disfigurement to see their inner beauty and give them back their voice.
Face2Face Healing creates the support network necessary to give individuals dealing with disfigurement the opportunity to meet and share with others who know how they feel. We create a caring, sharing and supportive environment where individuals can connect and make an investment in each others’ lives.
Karen Scuilli, RN, MSN, MBA (Co-Founder)
Karen Scuilli has spent 28 years as a nurse, a case manager and a clinical consultant. Karen helped to develop the Case Management Program at Washington Hospital (PA) in 1997. She was on the Case Management Task Force under the VP and Executive Director of Patient Care Services at Washington Hospital in 1999. In 2006, Karen moved to Highmark (health insurance provider) as a national case manager and then became Supervisor for National and Western Regional Conflicts Case Management where she led a team of 60 employees. In 2009, Karen advanced to the position of Highmark Clinical Consultant where she was responsible for analyzing large corporate accounts to establish plan-of-care solutions that improved large employer healthcare.
In addition to her clinical and administrative experience, Karen is a survivor, having gone through treatment for head and neck cancer, allowing her to understand from personal experience the needs of individuals with facial and other disfigurements. She has a Masters in Nursing and Business focusing on Healthcare Administration. Along with Dr. Pituch, Ms. Scuilli is cofounder of Face2Face Healing.
My journey started with a diagnosis of parotid cancer in May 2012. Like many, I was left emotionally, physically and spiritually unable to adapt to the resulting disfigurement in the journey of survivorship.
I experienced many changes and losses causing me to distance myself from supportive family, friends, church and the community. I, like others asked “Why did this happen to me?” and “ How will I move forward?”
This experience has given me a unique perspective. My goal is to encourage individuals, their families, healthcare professionals, and educators to come together in an innovative healing and supportive network.
Face2Face Healing creates this network and provides the opportunity for individuals with disfigurement to meet and share their stories with others who understand.
Ronald Glick, MD (Chair)
Dr. Glick is the Medical Director of the Center for Integrative Medicine at UPMC Shadyside and an Assistant Professor of Psychiatry and Physical Medicine and Rehabilitation at the University of Pittsburgh School of Medicine. His practice centers on the management of pain, health, and stress-related problems through the use of complementary approaches. Dr. Glick regularly teaches residents and medical students at the University of Pittsburgh about the use of integrative approaches to care and he is actively involved in research. Much of his practice centers around helping individuals who are experiencing chronic health conditions enhance their ability to manage pain and stress. He is pleased to serve as the Chair of Face2Face Healing and work to enhance programming and support for individuals with facial differences and other forms of physical impairment. Additionally, he is a founding board member and chair of another 501-C3 corporation, the International Network of Integrative Mental Health.
Dr. Pituch is a renowned expert in the field of oral & maxillofacial surgery. He holds a variety of leadership positions including Medical Staff President of UPMC Presbyterian Shadyside, Chair of the ongoing professional practice evaluation committee, and Chief of Oral and Maxillofacial Surgery. Dr. Pituch is a member of the Shadyside Hospital Foundation Board of Directors. Dr. Pituch is also the Pennsylvania State Medical Director for Avesis, Inc and sits on the credentials committee of the UPMC health plan. He is a Pennsylvania delegate to the American Association of Oral and Maxillofacial Surgeons and an Adjunct Clinical Professor at the University of Pittsburgh. Dr. Pituch co-authored the current Pennsylvania dental anesthesia inspection protocol, is broadly recognized in his field, has presented at global conferences, he also holds several medical device patents. Along with Ms. Scuilli, he is cofounder of Face2Face Healing.
Ms. Kail has over 14 years of customer service which includes 8 years working as an Office Manager for Mercy Behavioral Health, managing their busiest outpatient site. At the Center for Integrative Medicine, she is the Administrative Manager, directing a program of over 25 staff members. Although she has just started her tenure with UPMC, she enjoys leading by doing has already delve into her new role. Brittany is married and the mother of twins, Olivia and Sebastian. She enjoys warm weather, vacations, shopping and spending time with my family and friends.
Ms. Boody is a University of Pittsburgh graduate, University educator and served 25 years as the Director and Founder of the Dental Careers Program at Northern Area Special Purpose Schools. She developed and published competency based curriculum for the Department of Education and also presented curriculum seminars and biannual technical updates for dental and nursing educators at state and national health curriculum conferences. Since the beginning of her career Sandy has also worked clinically in the hospital and nursing home arena. Sandy has also been employed as a private practice clinical hygienist, a product representative, international sales team educator and product specialist. Most recently she has served as an oral care consultant training nursing staff and pharmacists in critical care settings, rehabilitation, nursing homes and hospice care. She also completed Orofacial Myofunctional therapy at the University of Southern California. As a cancer survivor, she speaks to dental/medical audiences and support groups on a variety of topics relating to the oral health of high risk populations, disfigurement and those undergoing cancer therapy. Her personal journey is an inspiration to national and international audiences. She has recently joined the Board of Directors bringing her passion and interdisciplinary skills to Face2Face Healing.
Susan Donnan, M.S. (Director of Programs)
Ms. Donnan is a recently retired mental health therapist and program administrator who knows firshand the challenges of living with facial paralysis. She worked with the patients at the Facial Nerve Center at UPMC, conducting support gropus for individuals with facial nerve and other disorders. In mental health, Susan was a therapist at inpatient psychiatric facilities and served as director of an intensive treatment day hospital. Susan was also the Exective Director of a shelter for homeless families and worked as an advocate to assure the enrollment of homeless children in public schools. She received her Masters in Social Work from Stephens College and University of Missouri.
Eugene N. Myers, MD, FACS, FRCS Edin (Hon)
Eugene N. Myers, MD, FACS, FRCS Edin (Hon) is Distinguished Professor Emeritus Department of Otolaryngology of the University of Pittsburgh School of Medicine. He is a graduate of the University of Pennsylvania and the Temple University School of Medicine. He did his residency at Massachusetts Eye and Ear Infirmary and was a Teaching Fellow at Harvard Medical School. Following military service as an Army Otolaryngologist in Frankfurt, Germany, he did a Fellowship in Head and Neck Surgery in New York with Dr. John Conley.
Dr. Myers became Chairman of the Department of Otolaryngology, University of Pittsburgh School of Medicine in 1972, a position he held for 33 years. He is an internationally known leader in head and neck cancer surgery. He continues to be very active in patient care and teaching. He has published hundreds of articles, book chapters, and two of his books Cancer of the Head and Neck and Operative Otolaryngology – Head and Neck Surgery are considered classics in the field. He is a past President of the American Board of Otolaryngology, the American Academy of Otolaryngology-Head and Neck Surgery, the American Head and Neck Society, and the American Laryngological Society.
Dr. Myers has devoted a large part of his career to international activities. He was President of the Pan American Association of Otolaryngology – Head and Neck Surgery in 1991, Honorary President of the Balkan Society of Otolaryngology – Head and Neck Surgery in 1991, and now again since 2011, and Honorary President of the Israeli Section on Head and Neck Oncology from 1991 – 1998. He was Chairman of the ad hoc committee on Head and Neck Cancer of the International Federation of Oto-Rhino-Laryngological Societies (IFOS) from 2003 – 2009. Dr. Myers is an Honorary Member of 20 overseas national societies of otolaryngology, and is a Fellow of the Royal College of Surgeons of Edinburgh and the Royal Society of Medicine in London. He is or has been a member of the Editorial Board of 14 international Journals. At the XIX ENT World Congress IFOS 2009 in San Paolo, Brazil, Dr. Myers was awarded a Gold Medal for his work in International Otolaryngology and also has been awarded a Gold Medal from Comenius University in Bratislava and one from Maribor University. He is now the American Academy of Otolaryngology – Head and Neck Surgery Regional Advisor to the Balkan Society of Otorhinolaryngology – Head and Neck Surgery.
Dr. Cahalane is the Chief of Adult Mood and Anxiety Services and Clinical Assistant Professor of Psychiatry at the University of Pittsburgh School of Medicine. He has primary responsibility for inpatient and outpatient programs specializing in the treatment of mood and anxiety disorders as well as the Psychiatric Consultation Liaison Services for UPMC system hospitals, Forensic and Telepsychiatry services, Electroconvulsive Therapy, the Center for Integrative Medicine, and Pastoral Care. He received a BS from St. Francis College, an MSW from Catholic University of America and an MPH and PhD from the University of Pittsburgh. He has co-authored a manual on coping with mental illness for families, co-authored a chapter in The Handbook of Marital Therapy and has co-authored numerous journal articles on cognitive therapy.
Valerie Fleming, RDH, BS
Ms. Fleming is a graduate of the University of Pittsburgh. Valerie began her education in Pitt’s dental hygiene program where she graduated valedictorian, then continuing to excel academically, she graduated Summa Cum Laude from University of Pittsburgh College of General Studies. Valerie has served on numerous committees and boards, including past president of Western Pennsylvania’s Dental Hygiene Association and advisory committee for the University of Pittsburgh Dental Hygiene Program. Valerie participates in a variety of community outreach programs and fundraisers. Valerie currently does marketing and sales for Smart Lab Dental Laboratory. In her downtime she has the pleasure of serving as a clinical educational consultant for several oral health companies. Valerie is excited to be involved with the Face2Face Healing because of the positive impact this has had on her personal life.
Jennifer DeBor, CPA
Ms. DeBor grew up in the northern suburbs of Pittsburgh. She Received a BS and MS degree in Accounting from Robert Morris University. She is an Audit Manager at McClintock & Associates and has over 10 years of professional experience. She began her career with PricewaterhouseCoopers where she worked on a variety of clients in both the public and private sector, as well as financial services and manufacturing industries. Prior to joining McClintock & Associates, Jennifer worked as a Finance Director at a large healthcare organization. Her areas of specialization are for-profit education, service based entities and non-profit organizations. She is affiliated with American Institute of Certified Accountants and Pennsylvania Institute of Certified Public Accountants. In addition to her professional responsibilities, she enjoys exercising, traveling and spending time with her family. Jennifer joined Face2Face so that she could have direct impact through her financial expertise upon an organization that focuses on the health and wellness of the individuals and community it serves.
Dr. Hawranko is a native of Pittsburgh who has been practicing dentistry for over 20 years. For over 15 of these years she has been in her own private practice. Having recently relocated her services from the northern suburbs of Pittsburgh, she is back in a city setting continuing her passion for dentistry at her practice in UPMC Shadyside Place. While not at her practice in Shadyside, Dr. Hawranko donates much of her time at Catholic Charities as one of the Staff Members in the Dental Practice in Downtown Pittsburgh. Looking for an opportunity to become involved with the Hillman Cancer Center, Dr. Hawranko was introduced to Karen Scuilli where she quickly knew she needed to become a member of Face2Face Healing. Having extensive knowledge on head and neck cancers, Dr. Hawranko has been screening each of her patients for many years. She is always accepting new patients who are referred to her office from the UPMC Hillman Cancer Center for pre-radiation treatment and is whole heartedly dedicated to ease the treatment side effects for patients from beginning to end. With knowledge on some helpful resources for Xerostomia and other effects from cancer treatment, Dr. Hawranko ensures patients’ oral health is at its best at all times.
Mr. Young leads the Human Resource (HR) efforts at Tele Tracking. During his tenure, he has redesigned the team to align with Tele Tracking’s strategy, in order to drive Tele Tracking’s noble mission and nurture the company’s unique culture. As a senior executive, he combines his human resources experience and strong business savvy to drive business results and outcomes. He also leads the TeleCares community outreach philanthropic program at Tele Tracking which was recognized as a top community support program in western Pennsylvania.
Mr. Young joined Tele Tracking after a 16-year career at the Pittsburgh based medical device company MEDRAD (now Bayer Healthcare), where he helped grow the company from an entrepreneurial organization into a highly successful global enterprise that was the two-time recipient of the Malcome Baldridge Award. At MEDRAD, Mr. Young led the development and implementaion of the global HR strategy and integration of acquired firms. He was also responsible for corporate wide compensation and benefits programs, talent acquisition, acquisitions ingegration, organizational development, talent management and cultural change.
His proven track record is exemplified by the successful development of numerous “best practice” Human Resources programs. Prior to that, Mr. Young held human resources and continuous improvement positions at Pillsbury, Inc., and Kraft Foods, a division of Phillip Morris. Mr. Young holds a bachelor’s degree in business administration from Indiana University of Pennsylvania and an MBA from the Univerisy of Dayton.
Ms. Deithorn has been a development professional for more than 18 years. Recognized as a leading expert in her field. She has worked with a variety of organizations, from human services to the arts to higher education. Her specialties include Grant writing, strategic planning, nonprofit board development, special-events, sponsorship procurement, event planning, sponsorship development, fundraising counsel, planned giving, development audits, policy development, writing for fundraising/marketing, board training, cultivation/solicitation planning, and non-profit board development.
She’s helped small and large nonprofits alike raise millions of dollars through capital campaigns, board development, events, telethons, annual fund campaigns, direct mail, major gift solicitations, and planned gift solicitations.
Nonprofit development can be complicated as well as difficult. Adriane’s primary mission is to make nonprofit development simple and effortless. She helps you clear away the complexity and raise funds much more effectively. To achieve her mission, Adriane is continuously improving herself and her fundraising expertise.
Neal Ryan, MD
Dr. Ryan is the Director of the Center for Integrative Medicine, the Joaquim Puig-Antich Professor in Child and Adolescent Psychiatry, and Professor of Clinical and Translational Science at the University of Pittsburgh School of Medicine. Dr. Ryan’s clinical and research work has involved the study of depression, bipolar disorder, and anxiety in children and adolescents, and chronic disorders in which stress and environmental factors play an important role. He also has a strong background in medical education and biomedical informatics.
Ms. Kogut is a clinical dietitian and graduate of the Arizona Center for Integrative Medicine health coaching program under the direction of Dr. Andrew Weil. She is a former oncology dietitian. Ms. Kogut is a health coach specialist at the University of Pittsburgh Medical Center and maintains a private integrative health coaching practice in Pittsburgh. She is the co- author of Nutrition & Cancer Practical Tips and Tasty Recipes for Survivors (Hygeia Media, 2011), and has a special interest in whole-person medicine, addressing patients as mental-emotional beings, spiritual entities, and community members as well as physical bodies. Her expertise is in combining conventional nutrition therapy with the intelligent use of holistic therapies.
Ms. Boody is an associate in the Qui Tam Practice Group of Pietragallo Gordon Alfano Bosick & Raspanti, LLP. She is based in the firm’s Philadelphia office.
Prior to joining the firm, Ms. Boody was awarded a Drexel Public Service Fellowship at the Pennsylvania Health Law Project. While there, she counseled low-income individuals on access to medical care and advised clients on their rights under the Medical Assistance and Medicare programs. She also developed informational materials and presented on Pennsylvania state changes to Medical Assistance.
Ms. Boody received her Bachelor of Arts in Medicine, Health and Society from Vanderbilt University. She earned her Juris Doctor from Drexel University, Thomas R. Kline School of Law, where she completed a Concentration in Health Law with Honors. While in law school, she served as an executive board member for Phi Alpha Delta and the Health Law Society. Ms. Boody also received awards for both Pro Bono Service and Best Class Performance.
Ms. Boody is admitted to practice in Pennsylvania and New Jersey.
Michael Mann, MBA
Mr. Mann is a native of Pittsburgh, and is Regional Manager for Dr. Bobbie Lee Hawranko where he maintains and oversees all her dental practices and employees within the Pittsburgh Area. As part of this operation he continually develops instructional materials for clinicians and patients. This perspective arms Michael with a front line understanding of where Face2Face Healing can be helpful. As an MBA graduate of Point Park University, Michael will also utilize his professional skills and considerable contacts within the medical and business communities to build support for the Face2Face Healing mission and operation. He will also manage the Facebook, Twitter, LinkedIn and other social media sites for Face2Face Healing.
Hanifa Nakiryowa is the Global Health Associate at the Jewish Healthcare Foundation working to advance the goals of JHF’s Women’s Health Activist Movement (WHAMglobal) by applying her internationally-recognized leadership and advocacy skills. Prior to joining JHF, Ms. Nakiryowa served as a special projects intern for the Pittsburgh Foundation during her final year as a graduate student at the University of Pittsburgh Graduate School of Public and International Affairs. She is a recent H. J. Heinz fellow and a second career graduate with Master of International Development and Human Security Studies from the University of Pittsburgh’s Graduate School of Public and International Affairs (GSPIA). Prior to joining GSPIA, Hanifa completed a Master’s degree in Economics at the University of Nairobi under the Collaborative Master’s Program sponsored by the African Economic Research Consortium (AERC), and a Global Change Leaders’ Certificate from COADY international Institute in Canada. She has worked as a program Monitoring and Evaluation specialist for the UNICEF-FBO partnership promoting Maternal and Child health, Women and children’s Rights and Girls’ education in Uganda. Ms. Nakiryowa’s work focuses on addressing gender-related challenges facing women and children in institutionally oppressive societies. She founded The Center for Rehabilitation of Survivors of Acid and burns Violence (CERESAV) in 2012 after surviving an acid attack in 2011, to raise the awareness of the problem, advocate for inclusion and minority rights, and to promote socioeconomic sustainability among burn violence survivors in Uganda. Ms. Nakiryowa’s work has won her several awards including the 2013 Kampala West-Rotary International Vocational Service Award for her work with empowering acid attack survivors in Uganda, the Iris Marion Young Award for her political engagement and social justice advocacy which has changed the face of acid attack violence in Uganda, the Sergeant James “Rip” Taylor Award for her public service, and an H.J. Heinz Fellowship for her leadership potential.
I want to start off by telling you about the joy I have in my heart right now! I’m so inspired by you and proud of you for taking the necessary steps to form an organization that will help people with facial disfigurement. Thank goodness I reached out to Christine.
The desperate search is over and I feel such great relief. It feels so comforting to know that there is help out there!! There is someone who actually understands and cares about what it feels like to go through loosing the face that you have always known. There is no way to describe what it feels like to anyone, including family because they are just happy you are alive. To be able to have a place to go, a community of support is invaluable to me. So, thank you, thank you, thank you!!!!
I know I must sound a bit over excited, but I cannot refrain. From the moment I hung up the phone with you, I have wanted to jump and shout.
I am here ready and willing to help and participate in any way possible that will make a difference. I want to share my strength and hope. Like you, I feel like God left me here for this purpose and it is so very important that I follow this path. I have done so well at overcoming many challenges and now I can help others. I think that this focus and feeling will help me along my continued journey. I would love to be able to participate through skype in your support group meetings when you get that set up.
You are a blessing and please keep me abreast of your progress.
I am looking forward to meeting you someday soon.
Finding Face2Face healing was a blessing for me. Being alone in a foreign country, dealing with my own disfigurement without someone to share my challenges with was the most difficult experience. But knowing that someone out there could understand my challenges and help me with coping mechanisms gave me a comfort I needed to navigate the new life here. Face2Face healing gave me that comfort. Interacting with people that have dealt with disfigurement from different experiences has been so enriching for me.
When Karen Scuilli and Dr. Daniel Pituch approached me about the Shadyside Hospital Foundation supporting a project Karen wanted to initiate at UPMC Shadyside….called Face 2 Face Healing…I was immediately inspired by Karen’s own personal situation, but more importantly by her passion and commitment to help others.
The Foundation enthusiastically provided start up funding to begin the program that would reach thousands of people afflicted with facial disfigurements. We are so pleased that we could be a part of this effort to improve so many lives and their quality of life.
I was so happy to learn about your organization and website!
People dealing with disfigurement can feel very despondent and alone.
I can’t tell you how desperately this sort of support and information group is needed.
Click here to download our press kit, which contains our logos, photos of people involved with our organization, and general information about us.
Interview with Denise Galloni from BPTV October 10, 2018
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