Mission: To build support through a community of individuals with disfigurement. We aim to promote healing through outreach, advocacy, interaction, activity, resources, and education.
Vision: To ensure that individuals with internal and external scars feel acceptance of themselves and empowered.
Integrity. We remain true to our mission and work hard to produce quality products, provide exceptional service to our constituents and maximize the support of our donors.
Excellence. We strive to provide high-quality content and strategies, basing our insights on experience, knowledge and data.
Leadership. We champion the importance of effective board leadership and action. It empowers boards with the knowledge of good governance practices. It encourages staff initiative and leadership and strives to be a model nonprofit organization.
Who We Are:
Face2Face Healing was created in response to the gap that often occurs when medicine has done all it can, but individuals are left emotionally and/or physically unable to adapt to the resulting disfigurement. Each year thousands of people confront facial and bodily disfigurement from common causes including, birth defects, cancer, burns, facial palsy, neurological issues, injuries and trauma. Many individuals experience loneliness due to isolation and/or rejection. Regardless of why a face or a body is
different, the pain and distress can leave a person feeling alone, confused and unable to resume an active life. While the healing process is slightly different for each person, the goal of Face2Face Healing remains constant; empower the individual with disfigurement to see their inner beauty and give them back their voice.
Face2Face Healing creates the support network necessary to give individuals dealing with disfigurement the opportunity to meet and share with others who know how they feel. We create a caring, sharing and supportive environment where individuals can connect and make an investment in each other’s lives.
Karen Scuilli, MBA, MSN, RN – Founder, Chair, Executive Director and Cancer Survivor
Karen’s journey started with a diagnosis of parotid gland cancer in May 2012. Like many, she was left emotionally, physically and spiritually unable to adapt to the resulting disfigurement in the journey of survivorship. She experienced many changes and losses causing me to distance myself from supportive family, friends, church and the community. She, like many others asked, “Why did this happen to me?” and “How will I move forward?”
This experience has given her a unique perspective on life. Her ultimate goal is to encourage individuals, their families, healthcare professionals, and educators to come together in an innovative healing and supportive network.
Face2Face Healing creates this network and provides the opportunity for individuals with disfigurement to meet and share their stories with others who understand.
Karen has spent 28 years as a nurse, a case manager and a clinical consultant. She helped develop the Case Management Program at Washington Hospital (PA) in 1997. She was on the Case Management Task Force under the VP and Executive Director of Patient Care Services at Washington Hospital in 1999. In 2006, Karen moved to Highmark (health insurance provider) as a national case manager and then became Supervisor for National and Western Regional Conflicts Case Management, where she led a team of 60 employees. In 2009, Karen advanced to the position of Highmark Clinical Consultant where she was responsible for analyzing large corporate accounts to establish plan-of-care solutions that improved large employer healthcare.
In addition to her clinical and administrative experience, Karen is a survivor, having gone through treatment for head and neck cancer, allowing her to understand from personal experience the needs of individuals with facial and other disfigurements. She has a master’s in nursing and Business focusing on Healthcare Administration.
Adriane has been a development professional for more than 19 years. Recognized as a leading expert in her field. She has worked with a variety of organizations, from human services to the arts to higher education to large healthcare systems. Her specialties include grant writing, strategic planning, nonprofit board development, special-events, sponsorship procurement, gala event planning, sponsorship development, fundraising counsel, planned giving, development audits, policy development, writing for fundraising/marketing, board training, cultivation/solicitation planning, and non-profit board development.
She’s helped small and large nonprofits alike. She has raised millions of dollars through capital campaigns, board development, events, telethons, annual fund campaigns, direct mail, major gift solicitations, and planned gift solicitations.
Nonprofit development can be complicated as well as difficult. Adriane’s primary mission is to make nonprofit development simple and effortless. She helps you clear away the complexity and raise funds much more effectively. To achieve her mission, Adriane is continuously improving herself and her fundraising expertise.
Adriane is also a 2-time cancer survivor. Like Karen, she experienced many changes and losses causing her to distance herself from supportive family, friends and the community. She understands, firsthand, the difficulty that you go through when diagnosed with cancer.
Board of Directors
Jennifer DeBor, CPA – Treasurer
Jennifer grew up in the northern suburbs of Pittsburgh. She received a BS and MS degree in Accounting from Robert Morris University. She is an Audit Manager at McClintock & Associates and has over 10 years of professional experience. She began her career with PricewaterhouseCoopers where she worked on a variety of clients in
both the public and private sector, as well as financial services and manufacturingindustries. Prior to joining McClintock & Associates, Jenni er worked as a Finance Director at a large healthcare organization. Her areas of specialization are for-profit education, service-based entities and non-profit organizations. She is affiliated with American Institute of Certified Accountants and Pennsylvania Institute of Certified Public
Accountants. In addition to her professional responsibilities, she enjoys exercising, traveling and spending time with her family. Jennifer joined Face2Face Healing so that she could have direct impact through her financial expertise upon an organization that focuses on the health and wellness of the individuals and community it serves.
Susan is a recently retired mental health therapist and program administrator who knows firsthand the challenges of living with facial paralysis. She worked with patients at the Facial Nerve Center at UPMC, conducting support groups for individuals with facial nerve and other disorders. In mental health, Susan was a therapist at inpatient psychiatric facilities and also served as a director of an intensive treatment dayhospital. Susan was also the Executive Director of a shelter for homeless families and worked as an advocate to assure the enrollment of homeless children in public schools. She received her Master’s in Social Work from Stephens College and University of Missouri.
Anna L. Silberman is the previous Vice President of Clinical Client Relations of Highmark Blue Cross Blue Shield. She held that position for 9 years where she led a team of clinicians who served as the clinical arm of Sales to analyze client data from disparate sources for insights that improved population based health management. Her team was client facing and accountable for influencing retention and acquisition of Highmark Clients and Partner Plans by recognizing strategies that improve utilization trends, increase preventive care rates and decrease the rates of preventable disease.
She has spent most of her career with Highmark Blue Cross Blue Shield and has established herself as a thought leader in the Health Care Field. She has held a variety of important leadership positions; such as, Executive Director of the Health Education Center, Vice President of the HealthPLACESystem of 22 community-based wellness centers and two mobile units, President and CEO of Lifestyle Advantage, a joint venture responsible for the national delivery of the Dr. Dean Ornish Program for Reversing Heart Disease. Prior to her last position, she was Vice President of Preventive Health Services where she was responsible for strategic development and delivery of preventive health services for Highmark members resulting in improved clinical outcomes, cost effectiveness.
Anna is a graduate of the University of Pittsburgh with a Bachelors Degree of Science and a Masters Degree for Public Health.
Mark S. Chambers, DMD, M.S.
Dr. Mark S. Chambers is a tenured Professor and clinical investigator in the Department of Head and Neck Surgery, Division of Surgery, and in the Department of Radiation Oncology, Division of Radiation Oncology, at The University of Texas MD Anderson Cancer Center in Houston, Texas. He also serves as Deputy Chair for the Department of Head and Neck Surgery and Chief of the Section of Oral Oncology and Maxillofacial Prosthodontics. Dr. Chambers is nationally and internationally recognized as an oral oncologist, maxillofacial prosthodontist, and clinical investigator with a focus on developing new approaches to treat oral-related side effects of cancer therapy. His clinical research efforts include studying the effects of stimulants, antibiotics, and enhancing the body’s immune system to manage dry mouth and injuries to the mouth caused by radiation and/or chemotherapy. Additional research efforts include learning more about the way biomarkers (substances found in the blood/tissue) and the oral microbiome (the bacteria and microorganisms in the mouth and throat) of a patient may influence the likelihood of cancer development. These efforts have led to an overall, global research focus to develop strategies to lower how often cancer treatment-related oral side effects occur and to put new practices in place to prevent or reduce these complications.
Alyssa was born and raised in North Huntingdon, PA (a few miles East of the city). She graduated from WVU with a degree in Business Marketing and a minor in Communications. While at WVU she was a member of the Business Fraternity, Delta Gamma, and the Marketing Club. Since returning to Pittsburgh, Alyssa married her husband Jordan. They have been together for 11 years in November. They met in high school and started dating her sophomore year at WVU. They have a 1 year old son named Colton and a 3 year old puppy named Jax. They are best friends! Any free time Alyssa has after work is spent running around in the backyard with those two. She has been with PNC for the last 8 years working in our Retail Banking space. Alyssa has managed 3 branches between downtown Pittsburgh and now Washington where she is looking to stay put for a little while!
Eugene N. Myers, MD, FACS, FRCS Edin (Hon) – Emeritus
Eugene N. Myers, MD, FACS, FRCS Edin (Hon) is Distinguished Professor Emeritus Department of Otolaryngology of the University of Pittsburgh School of Medicine. He is a graduate of the University of Pennsylvania and the Temple University School of Medicine. He did his residency at Massachusetts Eye and Ear Infirmary and was a Teaching Fellow at Harvard Medical School. Following military service as an Army Otolaryngologist in Frankfurt, Germany, he did a Fellowship in Head and Neck Surgery in New York with Dr. John Conley.
Dr. Myers became Chairman of the Department of Otolaryngology, University of Pittsburgh School of Medicine in 1972, a position he held for 33 years. He is an internationally known leader in head and neck cancer surgery. He continues to be very active in patient care and teaching. He has published hundreds of articles, book chapters, and two of his books Cancer of the Head and Neck and Operative Otolaryngology – Head and Neck Surgery are considered classics in the field. He is a past President of the American Board of Otolaryngology, the American Academy of Otolaryngology-Head and Neck Surgery, the American Head and Neck Society, and the American Laryngological Society.
Dr. Myers has devoted a large part of his career to international activities. He was President of the Pan American Association of Otolaryngology – Head and Neck Surgery in 1991, Honorary President of the Balkan Society of Otolaryngology – Head and Neck Surgery in 1991, and now again since 2011, and Honorary President of the Israeli Section on Head and Neck Oncology from 1991 – 1998. He was Chairman of the ad hoc committee on Head and Neck Cancer of the International Federation of Oto-Rhino-Laryngological Societies (IFOS) from 2003 – 2009. Dr. Myers is an Honorary Member of 20 overseas national societies of otolaryngology, and is a Fellow of the Royal College of Surgeons of Edinburgh and the Royal Society of Medicine in London. He is or has been a member of the Editorial Board of 14 international Journals. At the XIX ENT World Congress IFOS 2009 in San Paolo, Brazil, Dr. Myers was awarded a Gold Medal for his work in International Otolaryngology and also has been awarded a Gold Medal from Comenius University in Bratislava and one from Maribor University. He is now the American Academy of Otolaryngology – Head and Neck Surgery Regional Advisor to the Balkan Society of Otorhinolaryngology – Head and Neck Surgery.
Joanie Barr – Program Director
For the last 21 years, Joanie’s experience has grown throughout the many professional positions she has held at organizations emphasizing wellness programs. She has taught fitness classes and has coordinated wellness programs in both the private and public sectors at organizations including the YMCA of Greater Pittsburgh, Highmark, The Jewish Community Center of Pittsburgh, The Frick Historical Society, and as a Fitness Director at Colleton River Golf in Bluffton, SC.
From meditation, yoga, Pilates, Pilates Reformer, strength-based classes, running programs and aqua fitness to member engagement initiatives, and wellness programming, Joanie has a true passion for a person's overall well-being. She also takes great pride in the many fundraising initiatives she has created which has helped her succeed.
Matt’s facial palsy was the result of a tick bite he got in October of 2013. This happened two months after returning to Slippery Rock University tofinish a Bachelor’s degree in Psychology. Despite the symptoms andchallenges of Lyme Disease, Matt was able to finish his degree and complete a double major in Psychology and Philosophy. This entire journey taught Matt that regardless of how disfigurement occurs, it affects a person’s life in unforeseen ways, both good and bad.
Hanifa Nakiryowa is the Global Health Associate at the Jewish Healthcare Foundation working to advance the goals of JHF’s Women’s Health Activist Movement (WHAMglobal) by applying her internationally-recognized leadership and advocacy skills. Prior to joining JHF, Ms. Nakiryowa served as a special projects intern for the Pittsburgh Foundation during her final year as a graduate student at the University of Pittsburgh Graduate School of Public and International Affairs. She is a recent H. J. Heinz fellow and a second career graduate with Master of International Development and Human Security Studies from the University of Pittsburgh’s Graduate School of Public and International Affairs (GSPIA). Prior to joining GSPIA, Hanifa completed a Master’s degree in Economics at the University of Nairobi under the Collaborative Master’s Program sponsored by the African Economic Research Consortium (AERC), and a Global Change Leaders’ Certificate from COADY international Institute in Canada. She has worked as a program Monitoring and Evaluation specialist for the UNICEF-FBO partnership promoting Maternal and Child health, Women and children’s Rights and Girls’ education in Uganda. Ms. Nakiryowa’s work focuses on addressing gender-related challenges facing women and children in institutionally oppressive societies. She founded The Center for Rehabilitation of Survivors of Acid and burns Violence (CERESAV) in 2012 after surviving an acid attack in 2011, to raise the awareness of the problem, advocate for inclusion and minority rights, and to promote socioeconomic sustainability among burn violence survivors in Uganda. Ms. Nakiryowa’s work has won her several awards including the 2013 Kampala West-Rotary International Vocational Service Award for her work with empowering acid attack survivors in Uganda, the Iris Marion Young Award for her political engagement and social justice advocacy which has changed the face of acid attack violence in Uganda, the Sergeant James “Rip” Taylor Award for her public service, and an H.J. Heinz Fellowship for her leadership potential.
I can’t recall exactly when I contacted Face2Face Healing, but I know it was over a year ago when I was diagnosed with Bell’s Palsy and they became my primary support system.
Their professionalism, positive energy, and kindness along with giving me the information and persepctive I needed to get throught the uncertainty of dealing with my condition that was not life threatening, but altering was greatly appreciated.
As I write this, I am going on one year. Because of the duration and severity of my symptoms, I felt isolated. But Karen and Susan stay in tough with me, calling and checking to see how I am dong. I find the website with stories of inspiration very helpful.
I want to start off by telling you about the joy I have in my heart right now! I’m so inspired by you and proud of you for taking the necessary steps to form an organization that will help people with facial disfigurement. Thank goodness I reached out to Christine.
The desperate search is over and I feel such great relief. It feels so comforting to know that there is help out there!! There is someone who actually understands and cares about what it feels like to go through loosing the face that you have always known. There is no way to describe what it feels like to anyone, including family because they are just happy you are alive. To be able to have a place to go, a community of support is invaluable to me. So, thank you, thank you, thank you!!!!
I know I must sound a bit over excited, but I cannot refrain. From the moment I hung up the phone with you, I have wanted to jump and shout.
I am here ready and willing to help and participate in any way possible that will make a difference. I want to share my strength and hope. Like you, I feel like God left me here for this purpose and it is so very important that I follow this path. I have done so well at overcoming many challenges and now I can help others. I think that this focus and feeling will help me along my continued journey. I would love to be able to participate through skype in your support group meetings when you get that set up.
You are a blessing and please keep me abreast of your progress.
I am looking forward to meeting you someday soon.
Finding Face2Face healing was a blessing for me. Being alone in a foreign country, dealing with my own disfigurement without someone to share my challenges with was the most difficult experience. But knowing that someone out there could understand my challenges and help me with coping mechanisms gave me a comfort I needed to navigate the new life here. Face2Face healing gave me that comfort. Interacting with people that have dealt with disfigurement from different experiences has been so enriching for me.
When Karen Scuilli and Dr. Daniel Pituch approached me about the Shadyside Hospital Foundation supporting a project Karen wanted to initiate at UPMC Shadyside….called Face 2 Face Healing…I was immediately inspired by Karen’s own personal situation, but more importantly by her passion and commitment to help others.
The Foundation enthusiastically provided start up funding to begin the program that would reach thousands of people afflicted with facial disfigurements. We are so pleased that we could be a part of this effort to improve so many lives and their quality of life.
I was so happy to learn about your organization and website!
People dealing with disfigurement can feel very despondent and alone.
I can’t tell you how desperately this sort of support and information group is needed.
In the Media
Interview with Denise Galloni from BPTV October 10, 2018
- Article in Inspiring Lives Magazine Summer Edition
- Article by Sean Collier July 18, 2018 : A Weekend Mission of Mercy in Pittsburgh Hosted by Face2Face Healing
- Article by Natalie Reid Miller from the Observer Reporter June 23, 2018: More than a Face
- Pittsburgh Post Gazette May 10, 2018: Jefferson Award Winner Healing Hug
- Article by Jill Daly from the PIttsburgh Post Gazette May 1, 2018: Jefferson Finalist
- Article by sopghreporter Free Dental Clinic July 5, 2017: Mission of Mercy Pittsburgh Free Dental Clinic 2017 Hosted by Face2Face Healing
- Interview by Sarah Arbogast April 20, 2016 : Face2Face Healing Aims to Help Facial Disfigurement Patients
- Interview by Ken Rice July 24, 2015: Local Woman’s Battle with Cancer Inspires Unique Non-Profit
- Article by Denise Bachman from the Observer Reporter December 20, 2014: Reconnecting with those who have touched the lives of Others this year
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