About Us

About Us

Mission: To build support through a community of individuals with disfigurement. We aim to promote healing through outreach, advocacy, interaction, activity, resources, and education.

Vision: To ensure that individuals with internal and external scars feel acceptance of themselves and empowered.

Values:
Integrity. We remain true to our mission and work hard to produce quality products, provide exceptional service to our constituents and maximize the support of our donors.
Excellence. We strive to provide high-quality content and strategies, basing our insights on experience, knowledge and data.
Leadership. We champion the importance of effective board leadership and action. It empowers boards with the knowledge of good governance practices. It encourages staff initiative and leadership and strives to be a model nonprofit organization.

Who We Are:
Face2Face Healing was created in response to the gap that often occurs when medicine has done all it can, but individuals are left emotionally and/or physically unable to adapt to the resulting disfigurement. Each year thousands of people confront facial and bodily disfigurement from common causes including, birth defects, cancer, burns, facial palsy, neurological issues, injuries and trauma. Many individuals experience loneliness due to isolation and/or rejection. Regardless of why a face or a body is
different, the pain and distress can leave a person feeling alone, confused and unable to resume an active life.  While the healing process is slightly different for each person, the goal of Face2Face Healing remains constant; empower the individual with disfigurement to see their inner beauty and give them back their voice.

Face2Face Healing creates the support network necessary to give individuals dealing with disfigurement the opportunity to meet and share with others who know how they feel. We create a caring, sharing and supportive environment where individuals can connect and make an investment in each other’s lives.

History:
Face2Face Healing was founded in 2014, with the support of the Shadyside Hospital Foundation. Karen Scuilli, RN, MSN, MBA, a cancer survivor, and someone who has facial disfigurement, understood the need for a place like Face2Face Healing after realizing there were no services to support her. It was incorporated in August of 2014 and received 501c3 status in July 2015.

Direct services are provided by Karen Scuilli, Executive Director, and Adriane Deithorn, without cost to the patient. These include phone support, visits to individuals’ homes, hospital visits, and visits to medical or dental offices. Staff have provided over 10,000 hours of services. Others who we have not met in person receive information and interact through our website.

From the standpoint of health education, each week Face2Face Healing staff and volunteers talk to nursing units, professional groups, and consumer groups. We have been fortunate to speak at 3 national conferences in the last year. Our colleagues around Pittsburgh and Western Pennsylvania, are very interested in addressing the unmet needs of individuals living with facial and body disfigurement. This has led to local partnerships, with the potential for Face2Face Healing to expand its mission regionally.

Accomplishments:
Each year, Face2Face Healing conducts a Consumer Satisfaction Survey to give those we serve a chance to provide feedback about their experiences. We are extremely proud of what the survey is saying about the quality of care and the positive experience patients receive from our programs. Individuals frequently report that they are “treated with respect and not judged” and therapists are “respectful of the home.” A wounded Veteran responded with “I am very thankful I have an iPad to speak to my counselor at Face2Face Healing, and I am able to talk to my family as well, and they can see me”. One family member of a patient engaged in services reported, “ I am grateful that my husband has a place to come and be himself. I see a lot of improvement in his social skills and coping. I am grateful that Face2Face Healing has such compassion for anyone living with disfigurement.” Another spouse reported, “I am thankful for the care packages my husband receives from Face2Face Healing when he was admitted to the hospital”.

With the combined experience of our staff and volunteers, we are able to provide patient centered care with the highest degree of success. Further, we can establish and track measurable outcomes in order to maintain continuous quality improvement in our work and in the outcomes achieved by our patients and families. Our administrative infrastructure is aligned with the mission and vision of Face2Face Healing. This is done by design, to ensure that our processes and workflow are seamless and that our day-to-day operations and service delivery are efficient.

What We Do:

  • We provide in-person and on-line Support Groups
  • We provide in person and on-line individual counseling
  • We have a Blog entitled, Faces of Hope, which features amazing survivor stories.
  • We hold activity based programs for patients and their families.
  • We provide access to many educational resources.
  • We provide opportunities for patients and their families to take part in fitness classes, cooking classes and art classes, at no cost.
  • We provide case management to patients and their families.

Executive Leadership

Karen Scuilli

MBA, MSN, RN – Founder, Chair, Executive Director and Cancer Survivor

Karen’s journey started with a diagnosis of parotid gland cancer in May 2012.  Like many, she was left emotionally, physically and spiritually unable to adapt to the resulting disfigurement in the journey of survivorship. She experienced many changes and losses causing me to distance myself from supportive family, friends, church and the community.  She, like many others asked, “Why did this happen to me?” and “How will I move forward?”

This experience has given her a unique perspective on life.  Her ultimate goal is to encourage individuals, their families, healthcare professionals, and educators to come together in an innovative healing and supportive network.

Face2Face Healing creates this network and provides the opportunity for individuals with disfigurement to meet and share their stories with others who understand.

Karen has spent 28 years as a nurse, a case manager and a clinical consultant. She helped develop the Case Management Program at Washington Hospital (PA) in 1997. She was on the Case Management Task Force under the VP and Executive Director of Patient Care Services at Washington Hospital in 1999. In 2006, Karen moved to Highmark (health insurance provider) as a national case manager and then became Supervisor for National and Western Regional Conflicts Case Management, where she led a team of 60 employees. In 2009, Karen advanced to the position of Highmark Clinical Consultant where she was responsible for analyzing large corporate accounts to establish plan-of-care solutions that improved large employer healthcare.

In addition to her clinical and administrative experience, Karen is a survivor, having gone through treatment for head and neck cancer, allowing her to understand from personal experience the needs of individuals with facial and other disfigurements. She has a master’s in nursing and Business focusing on Healthcare Administration.

Adriane (Deithorn) Fascioli

CFRE, MS, PhD – Vice President of Development

Adriane has been a development professional for more than 19 years. Recognized as a leading expert in her field. She has worked with a variety of organizations, from human services to the arts to higher education to large healthcare systems. Her specialties include grant writing, strategic planning, nonprofit board development, special-events, sponsorship procurement, gala event planning, sponsorship development, fundraising counsel, planned giving, development audits, policy development, writing for fundraising/marketing, board training, cultivation/solicitation planning, and non-profit board development.

She’s helped small and large nonprofits alike. She has raised millions of dollars through capital campaigns, board development, events, telethons, annual fund campaigns, direct mail, major gift solicitations, and planned gift solicitations.

Nonprofit development can be complicated as well as difficult. Adriane’s primary mission is to make nonprofit development simple and effortless. She helps you clear away the complexity and raise funds much more effectively. To achieve her mission, Adriane is continuously improving herself and her fundraising expertise.

Adriane is also a 2-time cancer survivor. Like Karen, she experienced many changes and losses causing her to distance herself from supportive family, friends and the community. She understands, firsthand, the difficulty that you go through when diagnosed with cancer.

Board of Directors

Jennifer DeBor

CPA – Treasurer

Jennifer grew up in the northern suburbs of Pittsburgh.  She received a BS and MS degree in Accounting from Robert Morris University.  She is an Audit Manager at McClintock & Associates and has over 10 years of professional experience.  She began her career with PricewaterhouseCoopers where she worked on a variety of clients in
both the public and private sector, as well as financial services and manufacturingindustries.  Prior to joining McClintock & Associates, Jenni er worked as a Finance Director at a large healthcare organization.  Her areas of specialization are for-profit education, service-based entities and non-profit organizations. She is affiliated with American Institute of Certified Accountants and Pennsylvania Institute of Certified Public
Accountants.  In addition to her professional responsibilities, she enjoys exercising, traveling and spending time with her family.  Jennifer joined Face2Face Healing so that she could have direct impact through her financial expertise upon an organization that focuses on the health and wellness of the individuals and community it serves.

Susan Donnan – Counselor

MS – Volunteer Director and Facilitator of Support Groups

Susan is a recently retired mental health therapist and   program administrator who knows firsthand the challenges of living with facial paralysis.  She worked with patients at the Facial Nerve Center at UPMC, conducting support groups for individuals with facial nerve and other disorders.  In mental health, Susan was a therapist at inpatient psychiatric facilities and also served as a director of an intensive treatment dayhospital.  Susan was also the Executive Director of a shelter for homeless families and worked as an advocate to assure the enrollment of homeless children in public schools. She received her Master’s in Social Work from Stephens College and University of Missouri.

Anna L. Silberman

Anna L. Silberman is the previous Vice President of Clinical Client Relations of Highmark Blue Cross Blue Shield. She held that position for 9 years where she led a team of clinicians who served as the clinical arm of Sales to analyze client data from disparate sources for insights that improved population based health management.  Her team was client facing and accountable for influencing retention and acquisition of Highmark Clients and Partner Plans by recognizing strategies that improve utilization trends, increase preventive care rates and decrease the rates of preventable disease.

She has spent most of her career with Highmark Blue Cross Blue Shield and has established herself as a thought leader in the Health Care Field.  She has held a variety of important leadership positions; such as, Executive Director of the Health Education Center, Vice President of the HealthPLACESystem of 22 community-based wellness centers and two mobile units, President and CEO of Lifestyle Advantage, a joint venture responsible for the national delivery of the Dr. Dean Ornish Program for Reversing Heart Disease.  Prior to her last position, she was Vice President of Preventive Health Services where she was responsible for strategic development and delivery of preventive health services for Highmark members resulting in improved clinical outcomes, cost effectiveness.

Anna is a graduate of the University of Pittsburgh with a Bachelors Degree of Science and a Masters Degree for Public Health.

Alyssa Weidel

Alyssa was born and raised in North Huntingdon, PA (a few miles East of the city). She graduated from WVU with a degree in Business Marketing and a minor in Communications. While at WVU she was a member of the Business Fraternity, Delta Gamma, and the Marketing Club. Since returning to Pittsburgh, Alyssa married her husband Jordan. They have been together for 11 years in November.  They met in high school and started dating her sophomore year at WVU. They have a 1 year old son named Colton and a 3 year old puppy named Jax. They are best friends! Any free time Alyssa has after work is spent running around in the backyard with those two. She has been with PNC for the last 8 years working in our Retail Banking space. Alyssa has managed 3 branches between downtown Pittsburgh and now Washington where she is looking to stay put for a little while!

Eugene N. Myers

MD, FACS, FRCS Edin (Hon) – Emeritus

Eugene N. Myers, MD, FACS, FRCS Edin (Hon) is Distinguished Professor Emeritus Department of Otolaryngology of the University of Pittsburgh School of Medicine.  He is a graduate of the University of Pennsylvania and the Temple University School of Medicine.  He did his residency at Massachusetts Eye and Ear Infirmary and was a Teaching Fellow at Harvard Medical School.  Following military service as an Army Otolaryngologist in Frankfurt, Germany, he did a Fellowship in Head and Neck Surgery in New York with Dr. John Conley.

Dr. Myers became Chairman of the Department of Otolaryngology, University of Pittsburgh School of Medicine in 1972, a position he held for 33 years.  He is an internationally known leader in head and neck  cancer surgery.    He continues to be very active in patient care and teaching.  He has published hundreds of articles, book chapters, and two of his books Cancer of the Head and Neck and Operative Otolaryngology – Head and Neck Surgery are considered classics in the field.   He is a past President of the American Board of Otolaryngology, the American Academy of Otolaryngology-Head and Neck Surgery, the American Head and Neck Society, and the American Laryngological Society.

Dr. Myers has devoted a large part of his career to international activities.  He was President of the Pan American Association of Otolaryngology – Head and Neck Surgery in 1991, Honorary President of the Balkan Society of Otolaryngology – Head and Neck Surgery in 1991, and now again since 2011, and Honorary President of the Israeli Section on Head and Neck Oncology from 1991 – 1998.  He was Chairman of the ad hoc committee on Head and Neck Cancer of the International Federation of Oto-Rhino-Laryngological Societies (IFOS) from 2003 – 2009.  Dr. Myers is an Honorary Member of 20 overseas national societies of otolaryngology, and is a Fellow of the Royal College of Surgeons of Edinburgh and the Royal Society of Medicine in London.  He is or has been a member of the Editorial Board of 14 international Journals.  At the XIX ENT World Congress IFOS 2009 in San Paolo, Brazil, Dr. Myers was awarded a Gold Medal for his work in International Otolaryngology and also has been awarded a Gold Medal from Comenius University in Bratislava and one from Maribor University.  He is now the American Academy of Otolaryngology – Head and Neck Surgery Regional Advisor to the Balkan Society of Otorhinolaryngology – Head and Neck Surgery.

Advisory Board

Matt Bayless

Matt’s facial palsy was the result of a tick bite he got in October of 2013. This happened two months after returning to Slippery Rock University tofinish a Bachelor’s degree in Psychology. Despite the symptoms andchallenges of Lyme Disease, Matt was able to finish his degree and complete a double major in Psychology and Philosophy. This entire journey taught Matt that regardless of how disfigurement occurs, it affects a person’s life in unforeseen ways, both good and bad.

Hanifa Nakiryowa

Hanifa Nakiryowa is the Global Health Associate at the Jewish Healthcare Foundation working to advance the goals of JHF’s Women’s Health Activist Movement (WHAMglobal) by applying her internationally-recognized leadership and advocacy skills. Prior to joining JHF, Ms. Nakiryowa served as a special projects intern for the Pittsburgh Foundation during her final year as a graduate student at the University of Pittsburgh Graduate School of Public and International Affairs. She is a recent H. J. Heinz fellow and a second career graduate with Master of International Development and Human Security Studies from the University of Pittsburgh’s Graduate School of Public and International Affairs (GSPIA). Prior to joining GSPIA, Hanifa completed a Master’s degree in Economics at the University of Nairobi under the Collaborative Master’s Program sponsored by the African Economic Research Consortium (AERC), and a Global Change Leaders’ Certificate from COADY international Institute in Canada.  She has worked as a program Monitoring and Evaluation specialist for the UNICEF-FBO partnership promoting Maternal and Child health, Women and children’s Rights and Girls’ education in Uganda. Ms. Nakiryowa’s work focuses on addressing gender-related challenges facing women and children in institutionally oppressive societies. She founded The Center for Rehabilitation of Survivors of Acid and burns Violence (CERESAV) in 2012 after surviving an acid attack in 2011, to raise the awareness of the problem, advocate for inclusion and minority rights, and to promote socioeconomic sustainability among burn violence survivors in Uganda. Ms. Nakiryowa’s work has won her several awards including the 2013 Kampala West-Rotary International Vocational Service Award for her work with empowering acid attack survivors in Uganda, the Iris Marion Young Award for her political engagement and social justice advocacy which has changed the face of acid attack violence in Uganda, the Sergeant James “Rip” Taylor Award for her public service, and an H.J. Heinz Fellowship for her leadership potential.

Mark S. Chambers

DMD, M.S.

Dr. Mark S. Chambers is a tenured Professor and clinical investigator in the Department of Head and Neck Surgery, Division of Surgery, and in the Department of Radiation Oncology, Division of Radiation Oncology, at The University of Texas MD Anderson Cancer Center in Houston, Texas. He also serves as Deputy Chair for the Department of Head and Neck Surgery and Chief of the Section of Oral Oncology and Maxillofacial Prosthodontics. Dr. Chambers is nationally and internationally recognized as an oral oncologist, maxillofacial prosthodontist, and clinical investigator with a focus on developing new approaches to treat oral-related side effects of cancer therapy. His clinical research efforts include studying the effects of stimulants, antibiotics, and enhancing the body’s immune system to manage dry mouth and injuries to the mouth caused by radiation and/or chemotherapy. Additional research efforts include learning more about the way biomarkers (substances found in the blood/tissue) and the oral microbiome (the bacteria and microorganisms in the mouth and throat) of a patient may influence the likelihood of cancer development. These efforts have led to an overall, global research focus to develop strategies to lower how often cancer treatment-related oral side effects occur and to put new practices in place to prevent or reduce these complications.

Contact Us

     Face2Face Healing

     3000 Village Run Road, #103-206

     Wexford, PA 15090

   Call Us: 412-345-3078

 

    info@face2facehealing.org

10 + 2 =

     Face2Face Healing

     3000 Village Run Road, #103-206

     Wexford, PA 15090

   Call Us: 412-345-3078

 

    info@face2facehealing.org