Faces of Hope Blog

How living with CLOVES has changed my life
- December 22, 2019

I never really thought my syndrome had a significant impact on me as a person. I was alone for most of my life, thinking I was the only person in the world with this rare disease. Until I was correctly diagnosed and met others like me, I really struggled with my differences. I was born […]

Read more »

Putting on a Brave Face
- December 8, 2019

This article was originally published in Our South Bay. Fillers, injections and other cosmetic procedures are today’s magic wand. A few enchanting needle pricks, and fine lines, wrinkles and crow’s-feet miraculously vanish. It seems fighting the cruelty of age has never been easier. But what if the fairy tale ending of youth you imagined instead […]

Read more »

When you get the news that you have cancer….then what?
Karen Scuilli - December 1, 2019

As I meet new individuals in the beginning stage of their cancer diagnosis, I find that often times they are overwhelmed with many different emotions. They ask how did you get through it? Even though I don’t have all the answers, I do offer support and share what was helpful to me.  I wish I […]

Read more »

The Role of the Healer
, - November 24, 2019

As a healthcare provider and cancer survivor, I understand the frustration in finding the right healthcare provider in helping with your healing process.  Please check out this informative article about the role of the healer to learn more. “When we or our family members are suffering, we want it all. We want to see the […]

Read more »

Unfinished Business for God!!!
- November 17, 2019

At the age of 2 1/2 was diagnosed with rhabdomyosarcoma of the right eyelid. Mine came up with what was thought to be a stye and took me to surgery to lance it. That’s when it was determined to be cancer. I took 21/2 years of 3 different iv chemo’s and radiation and cobalt. I […]

Read more »

Want to share your story?
If you're an individual recovering from disfigurement, healthcare professional, or caregiver and want to share your message with our community, contact us and we'll work with you to share your story.