What do you see when you look at me?

I wrote this poem when I was picking up my son from school.  At that time, Seth was in the second grade. All of these thoughts and feelings that I had bottled up came flowing out on the empty piece of paper. I hope these words help anyone who is struggling with being...

Living with Facial Disfigurement during COVID-19

LIving with facial disfigurement has been an adjustment, to say the least.  Anyone who is living with something that makes them appear differently from the general population, also knows what I am talking about.  It has takenme 8 years to adjust to all of the...

Many Faces of Grief- Finding Your Fabulous!

There are many faces of grief.  Many people suffer a loss of a loved one which could be a parent, a friend or significant other and even a child and all this is a tragic loss. My story is a little different. Imagine for a moment that you lose something else beyond...
How To Survive Coronavirus Anxiety

How To Survive Coronavirus Anxiety

People are quick to jump to a worst-case scenario. That creates ongoing distress. Anxiety is sticky. We tend to make illogical leaps when we’re nervous. Ironically, feeling stressed like this not only feels bad, but increases the risk for becoming ill. The anxiety is...
How To Rebound

How To Rebound

Our minds expose us to different thoughts and feelings deep inside ourselves, which can seem very real.  A million dreams can take us away, but for some people, these dreams don’t always reflect a positive image. At times, these dreams can fill our heads with negative...
How living with CLOVES has changed my life

How living with CLOVES has changed my life

I never really thought my syndrome had a significant impact on me as a person. I was alone for most of my life, thinking I was the only person in the world with this rare disease. Until I was correctly diagnosed and met others like me, I really struggled with my...